And this is why they yell ‘aiyeee!’

Dear Internet,

I had my first Tai Chi / Kung Fu class today. This is part of my “2013, The Murray Has Landed!” project, which is why I spent this morning wishing I was still in bed, instead of being in a Ukrainian Community Hall performing a move that I think was called “Fondling The Pony In Slow Motion”, while my thigh muscles screamed about the retribution they would be inflicting on me tomorrow.

No, wait… the move is actually called “Parting The Wild Horse’s Mane”. I looked it up. Fondling The Pony In Slow Motion is probably a move that will only get you arrested…

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But it would be a nice island

Do you know who I think should be rounded up and pushed onto an island somewhere, never to return? All the good-looking people who are also very nice.

Good looking people I can cope with. Nice people I can cope with. But good-looking, nice people are obviously out of control and need to be stopped.

My periodontist is a good-looking, very nice person. I imagine he is probably very fondly thought of by a number of his female patients, and for all I know, some of his male ones as well.

Yes, the picture gets a little skewed by the fact that he’s a complete sadist when he gets his hands in your mouth and he’s torturing you to find out where the diamonds are hidden. Or, at least, this is what I imagine is happening when I have to see him, because that’s a thousand percent more interesting than gum problems.

However, some good news about this update:

Apparently the tooth may not be beyond all hope, and we are progressing as if it has a long and happy life ahead of it of lurking in the upper back right of my mouth, where it belongs.

Both elbows and one of his knees

Dear Internet,

I had to have gum surgery today and I feel like someone has been playfully tapping on the side of my head with a hammer.

Gum disease, unfortunately, is one of the many common problems associated with Lupus. Sadly, it looks like I might be losing one of my teeth in the near future.

For now, I am going to curl up in a ball and hope the painkillers start working soon.


Set my people free

Some days, tough days, when Lupus is grinding me down with pain and exhaustion, I dream of being set free.

Freedom can mean many things to me, and it changes from day-to-day. Sometimes from moment to moment.

Some days I am achingly tired, and all I want is to go to sleep peacefully and dream away the rest of my life.

Some days I force myself to be optimistic, and I think about what it would be like if there was a cure.

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As an Australian, I can’t directly participate in the Lupus Foundation of America’s ‘Help Us Solve the Cruel Mystery National Tour’, but I’d love to encourage any who can participate to do so! See the excellent post at “Lupus, the Adventure Between The Lines” for more details…

Lupus, the Adventure Between the Lines

You may know the Lupus Foundation of America, but have you heard about their new rallying cry and awareness campaign launched last week?  The new logo and branding campaign, should help spread lupus awareness, and help people better understand the mystery, complexity and potential severity of lupus.

Watch the video to learn more about the new LFA logo and awareness slogan:

To read more of the following excerpt from the ALA website, click on this link: more…

(From LFA Washington, DC) LFA is launching a multi-city education and awareness initiative to engage the public, healthcare providers and those living with the disease in the fight to end lupus. The Help Us Solve the Cruel Mystery‚ĄĘ National Tour will feature a 45-foot bus, equipped with eight interactive exhibits and displays, where visitors can learn about lupus, experience what it is like to live with the disease, and sign a petition to‚Ķ

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This is the sound of my heart breaking

Having Lupus is honestly hard enough. I can’t begin to imagine what it would be like to have this disease, to be abandoned by my partner, and to be struggling to raise a 13 year old child.

Empty Stocking: Lupus, husbands departure challenge single mother – Emptystocking.

I’d like to invite others with Lupus to blog / tweet / facebook about Laura, and others like her — our disease, and those affected by it, can use all the advocacy we can generate.

I’m not writing it down to remember it later…

I love this quote so very much!

I’m not writing it down to remember it later, I’m writing it down to remember it now.

I lifted it from the front page of the Field Notes website, and if I ever get a tattoo of a phrase on my inside wrist, it will be these words.

As a result of experiencing lupus fog, information often feels like it simply drains out of my brain regardless of how hard I try to retain it, and to compensate I semi-obsessively write things down, and record voice notes, and use tools such as Evernote to capture and store longterm memories. For that reason, the idea of writing something down to remember it now makes perfect sense to me.

To anyone else with a fog-like condition (for example, people with fibromyalgia often talk about ‘fibro fog’) who stumbles on this post, how do you fight the effects of your fog? Please share in the comments section below.

Say hello to my invisible arch-nemesis, Lupus

Every great story of a rooftop pursuit, or of a graveyard confrontation, or of a desperate backalley shootout should have an arch-nemesis. Sometimes it’s a smart talking gangster. Sometimes it’s a mad scientist with a mad laugh and a mad robot sidekick (which also has a mad laugh). Sometimes it’s the Butler in the Conservatory with the salad tongs.

My arch-nemesis is invisible and is called Lupus.

I was diagnosed with Lupus a little over a year ago, but the truth is I’ve been struggling with its symptoms, in one way or another, for many years. One of the reasons I decided to start this blog is that I want to more actively express my creative spirit before the disease drains it from me completely.

You see, once upon a time, I wrote stories…
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